The Christophe Lafontant Foundation for Myofibrillar Myopathies, Inc.

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WHAT WE DO

We are a non-profit organization with the intention of bringing much needed awareness to the extremely rare form of muscle disorders known as Myofibrillar Myopathies. It is also our mission to raise the funds necessary to further the research of Myofibrillar Myopathies, while simultaneously providing medical care and supplies to those patients who may be in need of financial assistance. The Christophe Lafontant Foundation for Myofibrillar Myopathies, Inc. was founded in October of 2014 by its president Christophe Lafontant, who has been battling MFM since the age of six. Christophe has managed to overcome all the odds that stood before him and has now taken on the brave mission to help other patients while spreading knowledge of  his very uncommon diagnosis. 

HOW DO WE DO IT 

Our funds are generally raised through generous donations, the sale of promotional products such as hats, t-shirts, & wristbands, as well as through various fundraising events, which are held throughout the year including our Annual Fall Charity Banquet!

MEET THE TEAM

From left to right: Entertainment Director: Crystal Vargas President: Christophe Lafontant
​Management Director: Mark Ippolito Treasurer: Mitch Mele

* Special thanks to all of our volunteers and sponsors without whom none of our events would be possible.